National Dwarfism Awareness Month – October 2013

September 25, 2012 @ 4 Comments

The SSPA has formed a group of members to come up with ideas to promote Dwarfism Awareness Month (DWAM) in 2013 and beyond.

The group currently consists of: Merry Young (Victoria), Alyssa Biddle (Tasmania), Graci Lynch (Victoria), Brittany Mamula (New South Wales), Sarah Darkin (Tasmania), Kobie and Sandra Lundie (Queensland). However, if you are interested in helping to co-ordinate DWAM this year and in the years to come, please drop us a line at: [email protected] or contact any one of us via phone or email.

We have the following proposal for 2013 DWAM!

We are looking to order and sell the ‘orange’ wristbands that were such a wonderful hit last year! We will also be looking at purchasing coffee mugs to sell also. Everyone drinks coffee right? Or maybe tea, but a coffee mug has so many uses!!!

Currently, a letter is being drafted to approach Bunnings Warehouse’s all around Australia to hold a sausage sizzle on a specified day in October. If you have a local Bunnings store that you would like to contact regarding holding a sausage sizzle, please contact us and let us know so that we can get a letter out to you. Letters will also be sent and co-ordinated with State Branch Secretaries and other nominated contacts, so you could also contact your state contact with information if you prefer.

If you are lucky enough to live in Victoria, a medical symposium will be held during the month of October to coincide with Dwarfism Awareness Month, so keep your eye out for more information on the date, time and location!

We are dedicated to making Dwarfism Awareness Month 2013 a success for all of Australia, so please let us know if you have any ideas for your area of Australia.

Please know that all monies raised will be raised for future promotion, education and information for our communities. We want to strive to make each DWAM bigger and better each year!

Please feel free to contact us at: [email protected] if you have any questions, concerns or comments re. the project.

Alternatively you can contact anyone in our group or your state contact via phone.

Looking forward to October 2013 and beyond!

All the very best,
DWAM Group

4 Comments → “National Dwarfism Awareness Month – October 2013”


  1. Suzann Franklin

    2 years ago

    Thank you for your informative article. As the mother of a short statured child with Acondropasia, it was very thought provoking. We’ll have to see how we can raise awarness for Oct as the National Dwarfism Awareness Month.
    I think it is a wonderful goal to increase community awareness.

    I would like to suggest a slight alteration to your tesxt. “It results from a spontaneous mutation and can happen in any pregnancy.” I think it would read better if if this sentance said, It results from a spontaneous mutation of a gene at conception, affecting an individuals genetics and can happen in any pregnancy.

    I feel this amendment makes it less likely to be construed to mean dwarfs are mutations, and more likely to indicate the mutation refers to a gene change affecting an individuals genetics.

    Reply

    • admin

      1 year ago

      Hello Suzann,

      Thanks for your suggested amendment to the article on Achondroplasia. This article was contributed by a specialist in genetics who has been involved in genetics research for many years, and also has been a member of the Short Statured People of Australia (SSPA) Professional Advisory Board. It was originally published as part of a publication titled “Information Guide to Persons of Short Stature”. Whilst your comments are valid, we always defer to members of the medical profession with regard to their explanations and knowledge of the causes of not only achondroplasia but also all the other conditions of short stature which result in dwarfism. Since this text was quoted directly from the aforementioned publication, I cannot alter it in way, shape or form because of copyright.

      Thanks again for your feedback.

      Kind regards.
      Francis

      Reply

  2. Sophie

    2 years ago

    Hi, I am writing an essay for University about what makes Dwarfism disabling and I am currently focusing on the environmental barriers within society that people living with Dwarfism face. I was just wondering if you could provide me with some of these barriers and how it affects people living with restricted growth.

    Many thanks,

    Sophie

    Reply

    • admin

      1 year ago

      Hello Sophie,

      Thanks for your enquiry.

      With regard to some of the barriers that short-statured people face there are many to choose from but here is a sample.

      In the home.
      – light switches
      – door handles
      – shower taps
      – sitting on toilet seats
      – mirror
      – hanging space in wardrobes
      – shelves
      – cupboards
      – laundry troughs … etc.

      In the workplace.
      – height of ergonomic desks and computer screens
      – chairs which require footstools
      – workbenches
      – cupboards
      – lifts and lift buttons

      There are also architectural barriers as well as those which are faced in using public transport such as trains.

      Potentially, the biggest barrier is buying clothes, and getting clothes adjusted to size.

      Hope this brief list is of help.

      Kind regards,
      Francis

      Reply

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