In 21 very quick months, Small Talk Radio on 3CR has developed into an efficient and compelling, topical program for short-statured people around the world, thanks to web radio technology. The ability to have this voice, at least in Australia, rivals the impact of the famous Little People, Big World TV show in USA and [...]
The draft legislation for a National Disability Insurance Scheme (NDIS) was introduced to Federal Parliament on Thursday 29 November 2012. This Bill will give people with disability a right to realise their potential, and to make choices and be in control of the decisions that affect their lives. People with disability, their families and carers have [...]
The World Dwarf Games are rapidly approaching and Team Australia is working extremely hard on the training track, as they are committed to raising the level of competition, integrity and passion at the 2013 World Dwarf Games. Following the third National camp for the Australian squad held from the 26th-28th January at the Sydney Academy [...]
SSPA members recently received the news that Professor David Sillence AM was awarded membership in the Order of Australia in the recent Australia Day Honours List. His nomination for the award and testimonials came from a number of people in the community support groups, including the SSPA, ConnecTeD Foundation and Osteogenesis Imperfecta Australia. The award recognizes his [...]
Interviews by Carole Lander US-born Graci Lynch, 30, met her husband Oliver, 33, on the internet. After a long courtship, they married and now live in Melbourne. They both have achondroplasia, a type of dwarfism, and together face the daily challenge of living in a society obsessed with body image. Graci’s story Oliver and [...]
by Tony Munro SSPA Correspondent The 2012 Short Statured People of Australia annual convention returned to Sydney’s northern beaches in early October when approximately 100 members, family and friends converged on the Elanora Convention Centre, in Elanora Heights. The SSPA’s flagship event was for the first time held in conjunction with the inaugural National Dwarf [...]
It’s the first time, in a long time, but Tasmania is hosting the 2013 SSPA National Convention. Some information has been received from the contact person, Sarah Belgre about it, which is included below. Please contact Sarah if you need further information regarding the Convention. She can be contacted at: sarah_belgre@hotmail.com. Below is some [...]
Recently, the Murdoch Children’s Research Institute in Melbourne has taken steps to beginning trials of a drug developed by the American pharmaceutical company Biomarin. The trials will be aimed at children with Achondroplasia between the ages of 4-9. The research suggest that the drug may help to reduce some of the complications associated with Achondroplasia; [...]
The Short Statured People of Australia Inc. extends its sincerest condolences to the family and friends of Dame Elisabeth Murdoch AC DBE. Our members are deeply saddened at the loss of an irreplaceable, gracious woman who has become an exemplary in selflessness. Dame Elisabeth’s unwavering generosity and passion for research with the Murdoch Children’s Research [...]
There is something about Albury and its’ mere three day holiday weekend that fails to leave attendees, both short and average-sized, feeling enriched but exhausted. I could sum it up for detail by saying ‘see last year’s report’, but that would never be accurate. Every year is slightly different and a core reason why it [...]