For the attention of SSPA members who will be attending the upcoming National Convention in Perth, Western Australia, new information has been made available by the 2015 Convention Committee concerning costs for day participants. This information can be viewed from the following link:
SSPA membership subscriptions are due from 1st August 2015. We would like to take this opportunity to thank you for your membership and hope that you continue in the year ahead. Please renew your membership to remain financial and enjoy the benefits of being an SSPA member.
Complete and submit the SSPA Membership form by clicking on the link below:
Remember your membership needs to be current to receive a discount on your Convention fees and to vote at the AGM.
**A big THANK YOU to the early birds who have already enrolled for 2015/2016.
2015 SSPA National Convention
Venue – Woodman Point Recreation Camp – Perth, Western Australia
Sunday 27 September – Saturday 3 October 2015
The Western Australian Branch will be hosting the 48th SSPA Convention and is inviting all members and their friends to attend.
The Convention starts on Sunday 27th September, running through until Saturday 3 October, most of which is within school holidays for the majority of states. Check here for more information. The Convention programme is available for viewing from here
Phillip Island Adventure Resort: http://piar.cyc.org.au/
Situated on 80 acres of landscaped grounds in the heart of Phillip Island, The Resort benefits from its close proximity to many local attractions and beaches. Featured among The Resort’s large choice of recreational facilities are 2 outdoor solar heated pools, 1 indoor heated pool, an extensive range of professionally built and accredited adventure activities, including 3 giant swings, 2 high ropes courses, 2 twin flying foxes, and 2 single flying foxes, plus 2 large recreational lakes.
We will be staying in Silverleaves which features air-conditioned dining, function and meeting areas plus activity facilities. Guest rooms are air-conditioned and ensuited.
The Resort offers disabled access to all and is fully accredited by – Australian Camping Association (ACA) and the National Accommodation Recreation & Tourism Accreditation (NARTA).
Lock it in your diaries now!
The 7th World Dwarf Games are to be held in 2017 with the country and dates to be announced. Although this is over two years away planning is well underway both here and abroad. We need to begin the process of organising training programs, camps, sponsorship and funding proposals, etc. As such we need to gauge interest from the members of the SSPA to determine the number of athletes wishing to compete and which events they will compete in. Additionally athletes will need to indicate attendance to the first national training camp – attendance and participation at training camps will be a key component of the selection criteria, which will be outlined at the first camp to be held in Sydney on 7th-9th August 2015.
Please complete the form below and return to Kobie Donovan (National Sports Coordinator) via email to: [email protected] A prompt reply would be much appreciated.
We would like to congratulate Clemence de Limburg who attended our 2011 National Convention at Alexandra Headland in Queensland, as our guest. Clemence was visiting Australia to add to her photography project about Little People, “Living Large”.
Clemence recently sent through an article which has been published by LENS blog of the New York Times, regarding Clemence’s work in progress.
This article features our very own Ella Sargison, Ashleigh Hutchinson, Sophie Cowlishaw, & Tayler Shannen, on their way to the ‘Glitz & Glamour’ Dinner Dance at the 2011 Convention.
Congratulations Clemence, we look forward to seeing your next publication.
To read the article, go here.
Statement on behalf of the SSPA:
The feature story that aired on 60 Minutes (Channel 9) on Sunday evening on the worldwide achondroplasia drug trial has opened up a huge conversation throughout Australia particularly via social media. The story featured Professor Ravi Savarirayan discussing the trial that boasts Melbourne as its largest centre. Part of the story were two young people who both have achondroplasia one who is taking part in the trial, one who is not. Their loving and supportive parents stood by them on the segment.
The SSPA is confident that Professor Savarirayan and his team at the Murdoch Children’s Research Institute are conducting this drug trial with the health and safety of these children as their prime consideration.
Professor Savarirayan has provided us with the following statement:
“Our aim is to simply try and prevent or decrease significant medical complications and keep these children healthy as adults, not to “cure” them or make them taller.
For instance, babies with achondroplasia have a 5 times increased risk of sudden death over those without it, and we hope that if the medication improves spinal bone growth this will be reduced or eliminated without risky surgeries.”
We would like to clarify a word raised within the segment when referring to the hopes of the drug trial providing “normal” lives for these children. Men and women of all ages with achondroplasia, and indeed any of the 300+ conditions of dwarfism, do lead fulfilling, happy and meaningful lives. With achondroplasia, and many other forms of dwarfism, some individuals will live their entire lives with no medical complications and no need for medical or surgical intervention. Others may experience complications that require medical and/or surgical intervention during the course of their lives.
The achondroplasia drug trial does not have the goal of ‘curing’ the condition, nor does it have the goal of making children with dwarfism average height. The drug trial is hopeful that it will be able to assist specific areas where complications can occur, such as bowing of the legs, sleep aponea, and spinal stenosis (narrowing of the spinal cord) just to mention a few. The SSPA believes anything that can help children and young adults avoid the need for surgeries, hospital stays, time off school, time away from their families/friends, and away from their ‘normal’ everyday lives, is absolutely a step forward.
We wish Professor Savarirayan, his team and those fortunate to be involved within the trial of this drug, every success and happiness.
National President – SSPA